PARTNERSHIPS AND RESULTS IN COMENIUS, LEONARDO DA VINCI AND GRUNDTVIG
National Agencies

2011-1-PL1-LEO04-19715

Wprowadzanie standardów najlepszej praktyki medycznej w leczeniu pacjentów z niedoborem alfa-1-antytrypsyny w Europie Środkowo-Wschodniej.

Leonardo partnerships

PARTNERS
  • Poland
  • Germany
  • Romania
  • Slovakia
  • Netherlands
  • Bulgaria
  • Lithuania
  • Italy
  •  

    ORGANIZATION Coordinator

    The National Institute of Tuberculosis and Lung Diseases

    TYPE OF ORGANIZATION

    Public research centres (not HE)

    ADDRESS

    26 Plocka street – Warsaw

    CONTACT PERSON

    Joanna Chorostowska-Wynimko

    Introducing standards of the best medical practice for the patients with inherited Alpha-1 Antitrypsin Deficiency in Central Eastern Europe

    The project ‘Introducing standards of the best medical practice for the patients with inherited Alpha-1 Antitrypsin Deficiency in Central Eastern Europe’ is coordinated by prof Joanna Chorostowska-Wynimko at the National Institute of Tuberculosis and Lung Diseases in Warsaw in cooperation with seven European partners representing medical centers from Lithuania, Romania, Slovakia, Bulgaria, Italy, Netherlands and Germany. The project main goal is to support development of Central Eastern European Network (CEE) for Alpha-1 Antytrypsin Deficiency (A1ATD) diagnostics and treatment that will function within AIR (Alpha One International Registry) European network of medical centers specializing in A1ATD. The project is designed to address specific CEE regional educational needs, therefore its aims are: • to develop individualized training program for respiratory professionals : physicians, physiotherapists, laboratory staff involved in A1ATD diagnostics and medical care in CEE; program will be tailored according to specific country needs • to develop educational materials for respiratory professionals in national CEE languages • to create awareness of A1ATD problem and patient needs in CEE • to promote A1ATD European network in CEE European countries Project Stages: Stage 1: Central Eastern European Network establishment: assessing local needs and potential to launch close cooperation both regionally as well as within the existing European network. Stage 2A: Training visits Stage 2B: Focus group workshops Stage 3A: European network AIR conference in Warsaw Stage 3B: Educational materials for respiratory professionals and dissemination of results Many project activities will be greatly assisted by local and national non-profit organizations ( Polish Foundation for Patients with Alpha-1 Antitrypin Deficiency, Jakub Count Potocki Foundation, Polish Respiratory) in particular those aiming at awareness increase and project outcomes disemination

    RESULTS
  • Joint results
  • Poland
  • Romania
  • Slovakia
  • Bulgaria
  • Alfa-1 Antitrypsin Deficiency-Asthma-COPD CD

    Special CD from The 1st Central-Eastern European Alpha-1 Antitryspin Network Conference which contains 17 presented lectures (pdf format) on the broader issues of epidemiology, diagnosis, clinical picture of alfa-1 deficiency in children and adults, current standards of medical practice.The conference was attended by 97 invited guests from Polish and European medical institutions.

    LANGUAGE(S)

    English

    AUDIENCE(S)

    Students, Adult learners, Teachers, Educators, Parents

    PRODUCT TYPE

    Didactic material

    AVAILABILITY

    To be ordered to j.szela@igichp.edu.pl

    COPYRIGHT

    Yes